“Why would someone adopt a badly abused,
non-speaking, six-year-old from foster care?” So,
the author was asked at the outset of his adoption-as-a-first-resort
adventure. Part love story, part political manifesto about
“living with conviction in a cynical time,”
the memoir traces the development of DJ, a boy written off
as profoundly retarded and now, six years later, earning
all “A”s at a regular school. Neither a typical
saga of autism nor simply a challenge to expert opinion,
it illuminates the belated emergence of a self in language.
And it does so using DJ’s own words, expressed through
the once discredited but now resurgent technique of facilitated
communication.
Encouraged by new studies showing the technique’s
efficacy with at least some non-speaking people with autism
and by the development of independent typing—those
who have weaned themselves from their facilitators’
support—Savarese and his wife tried FC with DJ. But
first they taught him how to read, painstakingly introducing
him to different modes of abstraction: photographs, picture
symbols, sign language, and ultimately words. The result
is a book that contains much of what DJ typed from age nine
to twelve—a rare archive indeed—and concludes
with a chapter composed entirely by him.
Follow along as DJ makes his first sign, enrolls
in his neighborhood school, reconnects with the sister from
whom he was separated, and begins to explore his experience
of disability, poverty, abandonment, and sexual abuse (the
latter through what researchers, concerned about facilitator
influence, call “multiple naïve facilitators”).
“Try to remember my life,” DJ declares on his
talking computer, and remember he does in the most extraordinarily
perceptive and lyrical way. Asking difficult questions about
the meaning of family, the demise of social obligation,
and the politics of neurological difference, Savarese argues
for a reasonable commitment to human possibility and caring.